Stargardt's Eye Disease Information and Research on Such A Site

This page is filled with links to information, research, Potential treatments, and a description of the Gene ABCA4 which is the cause of Stargardt's Disease. 

 

 

First, you should know that Stargardt's Disease is caused by the mutation of the ABCA4 Gene. That gene is also the one causing Retinitis Pigmentosa, Cone Rod Dystrophy, Macular Degeneration, and a host of other Retinal Diseases.

 

I have had the diagnosis of Fundus flavimaculatus as well as Stargardt's for many years.

My case became rare when the disease progressed into my peripheral field. Over the course of many years, my vision kept dropping and that could not be explained. The progression of the vision loss made a huge jump literally overnight and I became totally blind in August 2017.

 

I would like anyone who had their vision loss progress anywhere near like mine, to contact me. I would like to centralize our numbers rather than each of us be a rare case in our geographical location. My email address is suchasite1@gmail.com.

 

Now, here are links to information for anyone with Stargardt's, or if you know anyone who has the disease. The links cover everything from a basic explanation of Stargardt's or Fundus flavimaculatus   to research that has or is being done on the disease.

 

National Eye Institute on Stargardt's Disease, what it is, the symptoms, the prognosis, the genetics, the research being done, and much more.

 

Stargardt's Disease Fully Explained by the American Academy of Ophthalmology.

 

All About Visionís Rare Diseases Page on Stargardt's Disease

 

Stargardt's Diseased Defined By the AMDF Foundation. 

 

Stargardt's disease | Genetic and Rare Diseases Information Center (GARD) - an NCATS Program

 

Retina Foundation Participates in International Effort to Treat Stargardt's Disease

 

Gene Therapy on Stargardt's Completed and Being Done through assistance of Bright Focus Foundation

 

Foundation Fighting Blindness Launches the Stargardt's Disease Natural History Study - Eyewire News

 

Vitamin A in

 

Stargardt's Disease Vitamin A Contraindication - Natural Eye Care Blog: News & Research on Vision 

 

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